EPILEPSY ASSOCIATION SARAJEVO - HELP IT
Association of Persons with Epilepsy in BiH
Federation of Bosnia and Herzegovina
HVB-Central Profit Bank, joint stock company-Sarajevo-BiH> T/R-Number:129-104-10009012-44 Foreign currency - Swift-code. BACXB22. For Association of Persons with Epilepsy-Sarajevo; Telephone:0387 33 -463-411; Fax: 459-018;
Mobile thelephone: 061-218-774
Ante Babica7/1 Street, Sarajevo Bosna i Hercegovina
E-mail: epilepsijabih@hotmail.com> Web-page: www.epilepsija.com
Our Association is a non-governmental humanitarian organization established > in 2001 with an aim of providing assistance and education to persons who > suffer from this illness, as well as to those who are either in direct or > indirect contact with them. This is in order to help them better organize > themselves in realization of their basic human rights when it comes to: > their children, education, free choice of occupation, realization of right > to work, care of the ill, and to enable them to become equal members of the > community they live in and belong to.> > - Although the Association is primarily registered on the Cantonal level, it > expanded its activities to the whole territory of the Federation.> The reason is that our Association is the only organization of this kind on > the BiH territory, and there are many persons with epilepsy who require more > stable health condition than they are currently in.> > - Association gathers 170 members of Sarajevo Canton, 85 from other Cantons, > as well as 10 associate members: doctors (neurologists), social workers and > pedagogues.> > Our Association would even be more numerous, if this illness wasn't a taboo > and if there were no prejudice related to it.> > - This is why we use this opportunity to invite all those with this medical > condition, their parents, friends and others who have interest in epilepsy > to join us.> > Problems we encounter are:> - Lack of modern anti-epileptics, which are unfortunately not on the > essential list in BiH, and are very expensive, to buy them and to get them. > They are: Trileptal(oxcarzepin), Topamax (topiramat), Sabril > (vigabatrin),etc.> > One monthly supply of the above mentioned anti-epileptics per one member > resistant to standard anti-epileptics is from 75 to 150 Euro.> > - We are, unfortunately not able to get those medications regularly, without > help of wider public and good humane people.> - The mentioned anti-epileptics are not taken for a month or two, but for > years, and some, unfortunately for the rest of one's life.> - Apart from the abovementioned problems, our association is in lack of > office equipment, such as: computer, printer, fax machine and other > equipment necessary to carry out our activities.> > We wish to send this appeal to all the people of good will and ask them to > show some humanity and will, and get actively involved in the wider campaign > against this illness, which is taking place in Europe and here, in Bosnia.> > > How can you help us?> There are many ways and we will be grateful for any one of them> *Be one of the sponsors of our work and activities.> *You can donate you products, instead of money.> *You can pay in some money on our bank account.> *You can help us in procurement or purchasing of the necessary > anti-epileptics.> *You can offer us your services free of charge.> *Even if you don't offer anything concrete (money, products or services) we > will be grateful if you transmit this message to you acquaintances, friends, > family members...> > -By offering support to those who are ill, you can save and extend their > life.> > Respectfully yours.> > P.S. Please provide us with you reply on this appeal.
Presidency of the EPI Executive Board
Jasmin Halilovic
Federation of Bosnia and Herzegovina
HVB-Central Profit Bank, joint stock company-Sarajevo-BiH> T/R-Number:129-104-10009012-44 Foreign currency - Swift-code. BACXB22. For Association of Persons with Epilepsy-Sarajevo; Telephone:0387 33 -463-411; Fax: 459-018;
Mobile thelephone: 061-218-774
Ante Babica7/1 Street, Sarajevo Bosna i Hercegovina
E-mail: epilepsijabih@hotmail.com> Web-page: www.epilepsija.com
Our Association is a non-governmental humanitarian organization established > in 2001 with an aim of providing assistance and education to persons who > suffer from this illness, as well as to those who are either in direct or > indirect contact with them. This is in order to help them better organize > themselves in realization of their basic human rights when it comes to: > their children, education, free choice of occupation, realization of right > to work, care of the ill, and to enable them to become equal members of the > community they live in and belong to.> > - Although the Association is primarily registered on the Cantonal level, it > expanded its activities to the whole territory of the Federation.> The reason is that our Association is the only organization of this kind on > the BiH territory, and there are many persons with epilepsy who require more > stable health condition than they are currently in.> > - Association gathers 170 members of Sarajevo Canton, 85 from other Cantons, > as well as 10 associate members: doctors (neurologists), social workers and > pedagogues.> > Our Association would even be more numerous, if this illness wasn't a taboo > and if there were no prejudice related to it.> > - This is why we use this opportunity to invite all those with this medical > condition, their parents, friends and others who have interest in epilepsy > to join us.> > Problems we encounter are:> - Lack of modern anti-epileptics, which are unfortunately not on the > essential list in BiH, and are very expensive, to buy them and to get them. > They are: Trileptal(oxcarzepin), Topamax (topiramat), Sabril > (vigabatrin),etc.> > One monthly supply of the above mentioned anti-epileptics per one member > resistant to standard anti-epileptics is from 75 to 150 Euro.> > - We are, unfortunately not able to get those medications regularly, without > help of wider public and good humane people.> - The mentioned anti-epileptics are not taken for a month or two, but for > years, and some, unfortunately for the rest of one's life.> - Apart from the abovementioned problems, our association is in lack of > office equipment, such as: computer, printer, fax machine and other > equipment necessary to carry out our activities.> > We wish to send this appeal to all the people of good will and ask them to > show some humanity and will, and get actively involved in the wider campaign > against this illness, which is taking place in Europe and here, in Bosnia.> > > How can you help us?> There are many ways and we will be grateful for any one of them> *Be one of the sponsors of our work and activities.> *You can donate you products, instead of money.> *You can pay in some money on our bank account.> *You can help us in procurement or purchasing of the necessary > anti-epileptics.> *You can offer us your services free of charge.> *Even if you don't offer anything concrete (money, products or services) we > will be grateful if you transmit this message to you acquaintances, friends, > family members...> > -By offering support to those who are ill, you can save and extend their > life.> > Respectfully yours.> > P.S. Please provide us with you reply on this appeal.
Presidency of the EPI Executive Board
Jasmin Halilovic
posted by BiH Platform at 7:57 AM
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